It's been awhile since I posted on here. When we realized the CBD oil did not work for June, it got to be too painful to post updates. Many of you know that June passed away in February of this year, but I wanted to update the blog to show that.
Here is her obituary:
Below is what I said about June at her funeral:
You are my darling, my angel, my star, and my love will find you wherever you are.” These are the closing lines of my favorite book to read to June, “Wherever you are my love will find you” by Nancy Tillman. I’ve said those words a thousand times to June, and I could never mean them more than I do now as I send my love to June in heaven.
When we realized early on that June had significant health problems, and we didn’t know what her future held, I told myself that no matter what, I wanted June to feel and know love. And, boy, did she ever know it. Not just from Matt, George, and me, but from her grandparents, aunts, uncles, cousins, friends, therapists, teachers, doctors, nurses, and people all over the country who did not even know her. I am in awe of how many people June touched. For someone with limited physical abilities, her impact on this earth knew no bounds.
June was easy to love. She was so sweet, and her smile and laugh were contagious. But what some people may not know about her is that she was also very sassy. She had an air of importance that we often referred to as her diva complex. She just expected everyone to do things for her, and she didn’t care if it was her parents, her therapists, or the neurologist… she was going to have you at her beck and call. One of my favorite things about June was how she used to trick her therapists into thinking she was asleep. As soon as they arrived, she would close her eyes and pretend she was sleeping. Every so often we would see her peek with one eye open and then quickly close it if she saw we were looking towards her. Then, without fail, as soon as the therapists closed the front door, June would perk up and was ready to go.
June was also a fighter. She faced incredibly difficult circumstances from the moment she came into this world. She went to countless doctors’ appointments all over the country, had every test in the book, and she tried numerous treatments with horrible side effects that would be uncomfortable for any adult yet alone a 4-month-old baby. I’m not going to say she did it all with a smile on her face, but she did manage to smile through it all and that is remarkable and something about her that I will always carry with me.
June was and always will be my teacher and my inspiration. She taught all of us to see the beauty in the hardships, to look for the helpers in the world rather than focus on the tragedy, but most importantly, she taught me about unconditional love. I love that little girl with every ounce of my being and not a minute will go by where I do not think of her and her beautiful spirit. I am so blessed to be her mommy.
Thank you all for coming today and honoring our baby girl. Goodnight my sweet angel. Mommy loves you.
Thank you all for your thoughts and prayers for June and our family. We couldn't have made it through without all of your love and support.